Hope For HumaNS

About

Hope for Humans exists to provide dignity, comfort, safety and hope to children afflicted with Nodding Syndrome and their families. We are creating a future where these innocent victims can receive the lifelong medical care and support they need to live a dignified life. We're dedicated to the treatment and eradication of this devastating and fatal condition.

Nodding Syndrome, or nodding disease, is a neurological disorder with no known cause or cure. Its name is derived from the strange nodding-like symptoms children display in the first stages of a seizure. This mysterious condition typically affects children between the ages of 5 and 15. Those affected experience intractable seizures and stunted physical and mental growth. A typical Nodding seizure is triggered by eating or exposure to cold. Because it is a progressive neurological disorder, the children become completely impaired, and require round-the-clock care by a society already stressed to its limits. Children with Nodding Syndrome are said to "live in dead bodies." The seizures result in children wandering into the bush, falling into open cooking fires, water wells, or creeks. Tragically, parents are forced to restrain their children by tying them to trees or locking them inside huts so they are able to perform their daily tasks.

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education, nodding syndrome, health care

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