Hemophilia Council of California

About

Our Mission: To improve access to care and treatment options in order to advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in collaboration with its founding member organizations

Our Vision: Open access to quality innovative care and choice of treatment for all people with bleeding disorders.

Our History: The Hemophilia Council of California (HCC) was founded in 1982 by the four California hemophilia organizations and incorporated as a 501(c)(3) nonprofit public charity organization in 1989. Initially formed to coordinate state-level advocacy in response to HIV-contaminated clotting factor, the Council is now a consumer advocacy organization which coordinates statewide access, education, and advocacy efforts in conjunction with the four California bleeding disorders chapters. HCC advocates to protect access to care, promote progressive treatment options and advance the quality of life for individuals, families and caregivers living with hemophilia, von Willebrand disease and other bleeding disorders.

Keywords

public policy education, bleeding disorders advocacy, youth leadership education, health policy, patient advocacy education

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