Usher Syndrome Coalition

About

The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals and families affected by Usher syndrome.

The Coalition counts a number of leading institutions and researchers among its members. Member institutions bring their expertise and commitment to the work of the Coalition, collaborating with partners and researchers from some of the finest international organizations in the world. In short, the Usher Syndrome Coalition strives to be the most comprehensive resource for the Usher syndrome community.

Keywords

ush trust, an international usher syndrome registry, annual usher syndrome family conferences, unraveling ush, an usher syndrome genetic testing initiative, ush blue book, international symposiums on usher syndrome, ush yellow book

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